FOR THE LOVE OF ALICIA
Ken and Judy Lochner had never heard of tuberous sclerosis 19 years ago. All they knew is that their baby girl, Alicia, had started acting oddly and was having seizures. Tests revealed calcium deposits on her brain had crowded out healthy tissues and were affecting its function. Doctors told the Lochners that children who are so severely affected seldom live past age 25. Today, at age 19, Alicia is not verbal and has the cognitive skills of a 4-to8-month-old baby. Though she can walk and feed herself with guidance, Alicia requires round-the-clock care and has lived in an assisted living center since age 10. Ken and Judy have remained an imitate part of her life, despite living without her, and worked hard to assure that Alicia's world is all it can be in the time she has left.